Your information belongs to you. We look after it, but you're in charge.

This statement explains what information Neuroqueer ("we", "our", "us") collects, why we collect it, and how we keep it safe. We follow the Privacy Act 1988 (Cth), the Australian Privacy Principles, and the rules that apply to the services you access with us, like Medicare requirements and the National Disability Insurance Scheme (NDIS) Code of Conduct.

If anything in this statement is unclear, or you'd like it in another format, please contact us.

The short version

• We only collect information we need to support you.

• We never sell your information, and we never use it for marketing without asking you first.

• A person always makes the decisions that affect you. Artificial intelligence (AI) tools help us with our work, but they don't decide anything about you.

• You can ask to see your information, have it corrected, and ask questions about it at any time.

• If something goes wrong, we'll tell you.

What we collect

We collect information that helps us support you and meet our legal obligations. This can include:

• Who you are: your name, date of birth, and pronouns.

• How to reach you: your address, email, and phone number, and how you prefer to communicate.

• Your health and support needs: health information, disability-related information, safety information, and documents that relate to your care or funding (like referrals, care plans, or NDIS plans).

• Money matters: billing details and how your services are paid for, like Medicare details, NDIS funding, private health insurance, or direct payment.

• Anything else you choose to share with us.

You choose what to share. We only ask about things like gender, sexuality, or disability when it helps us support you, and it's always okay to say "I'd rather not say".

Where practical, you can deal with us anonymously or under a different name, like when making a general enquiry. Keep in mind that staying anonymous limits what we can do: for most healthcare services, we need to know who you are.

How we collect it

Most information comes straight from you. Sometimes we collect it from other people, like your family or chosen family, carers, other providers, your doctor, or a funding body. When information comes from someone else, we only collect it with your consent, unless the law requires otherwise.

Why we use it

We use your information to:

• Provide your services and coordinate your care and supports.

• Communicate with you and the people you've chosen to be involved.

• Keep accurate records, as Australian law and our funding bodies require.

• Improve our services. When we use information to learn and improve, we remove names and identifying details wherever possible.

AI and automated decision-making

We sometimes use AI tools to help us with our work. A person always checks and approves anything that affects you.

Many of our team are neurodivergent or have a disability, and we know firsthand how transformative the right tools can be. AI helps us process information, reduce admin, and put our energy where it matters most: the people we support.

How we use AI:

• Admin tasks, like drafting documents, summarising information, and managing workflows.

• Helping our clinicians and team bring together clinical information to prepare reports, letters of support, and care summaries.

• Research, learning, and professional development for our team.

AI is always a tool in the hands of a qualified person. Every AI-assisted output is reviewed and finalised by a human. AI never makes clinical decisions, and we don't use computer programs to decide who can access our services or supports.

How we protect your information when using AI:

• We only use secure, enterprise-grade AI tools, and no information you give us is ever used to train AI.

• We only give AI tools the minimum information needed for the task.

• Our team follows a detailed internal AI policy, in line with Australian privacy law, the NDIS Code of Conduct, and the Australian Health Practitioner Regulation Agency's (AHPRA) guidance on AI in healthcare.
  

Your choices:

• You can always ask us how AI was used in your care, and we'll give you a straight answer.

• We'll ask you first before AI tools are used during an appointment with us, like helping us write notes. If you'd rather we take notes by hand, we will. No questions asked.

• Where practical, you can ask us not to use AI in parts of your care.

We know that LGBTQIASB+ people, neurodivergent people, and people with disability can be unfairly impacted by automated decisions, especially in recruitment. We never use AI to make recruitment decisions. Humans review every application. We use AI to help us process large amounts of information that helps us make recruitment decisions, like comparing where people are asking us for support and where applicants are located (demand planning).

Who we share it with

We only share your information when it's needed to support you or when the law requires it. That can mean:

• Other providers involved in your care, with your consent.

• The people you choose: family, chosen family, partners, friends, guardians, or advocates. You decide who's on your team, and you can change your mind at any time.

• Government agencies where the law requires it, like Medicare, the National Disability Insurance Agency (NDIA), or the NDIS Quality and Safeguards Commission.

• Trusted contractors who help us run our services. They're bound by confidentiality and can only use your information to do their job.

We never sell your information. We never share it for advertising.

If Neuroqueer ever merged with or was sold to another organisation, your information could transfer to them. If that happened, we'd tell you first, the new organisation would have to follow this statement and Australian privacy law, and you'd have the chance to ask questions.

How we keep it safe

• We store your information in secure electronic systems with restricted, password-protected access.

• We prioritise keeping data in Australia. Where a system stores information overseas, it stays protected by our agreements with that provider and by Australian privacy law.

• We check every new system's security before we start using it, and we prefer providers certified to ISO/IEC 27001, a leading international security standard.

• Every vendor and system we buy goes through our Ethical Partnership & Procurement Policy assessment first. That means we check things like values alignment, security, and data sovereignty before your information ever touches a new system.

• We regularly review and audit our security.

If a data breach ever put your information at risk, we'd act immediately to contain it, tell you what happened and what we're doing about it, and notify the Office of the Australian Information Commissioner where the law requires.

How long we keep it

We keep your information only as long as we need it to support you and to meet legal record-keeping requirements. After that, we securely destroy it or remove anything that identifies you.

Your rights and choices

• You can ask for a copy of the personal information we hold about you. The law lets us refuse in some limited situations, like where sharing information would put someone's safety at risk. If we ever have to say no to part of a request, we'll explain why.

• You can ask us to correct anything that's wrong or out of date.

• You can change your mind about consent you've given us.

• You can bring a supporter or advocate to any conversation with us, including conversations about your information.

To do any of these, please email us at [email protected]. We may ask you to confirm your identity first. These requests can take time. We aim to respond within 30 days.

Cookies and website analytics

Our website uses cookies and analytics tools to understand how people use it and to make it work better. This information includes things like your IP address (a number that identifies your internet connection), browser type, and the pages you visit. It doesn't tell us who you are. You can turn cookies off in your browser settings.

Questions and feedback

If you have a question or concern about your privacy, please tell us. We welcome feedback: it helps us do better, and raising a concern will never affect your supports. Our Feedback Statement explains how to share feedback and what happens next.

If we can't resolve a privacy concern, you can contact the Office of the Australian Information Commissioner (OAIC) on 1300 363 992 or at www.oaic.gov.au.

Changes to this statement

When we update this statement, we'll post the new version on our website with the date it was last updated. For significant changes, we'll let you know directly.

This statement was last updated on 16/07/2026.